Baked alive..
I thought id better blog today as I am not brilliant I have pain in all my body legs back front sides ribs shoulders head jaw neck arms and hands and feet, and I am HOT..
It seems that whilst,"Here am I floating in my tin can," (Thanks to D Bowie, My life feels a little like ground control to major Tom sometimes !)..
...... and the sun has come back out in the UK, after the amazing cooling rain and I am almost cooked with no escape...
"Planet earth is blue but there's nothing I can do".
Last night with my grandson Billy
I took Billy (My almost 5 yr old grandson) to the big climbing walls at Marple Mill, his Uncle and step Dad were going and so my 32 week Pregnant daughter could get some rest.....
once we got there he was enthralled with the place and wanted to climb, I paid the money and it was the best £5 I have ever spent, He loved it, climbing higher than I thought he would/could. The only thing was climbing down but with a 20 ins crash mat on the floor that was easy!! 3 hrs later.................
I also tried to do a little I got to approx. 6ins off the ground and that is the reason for my body hurting so much i was holding my 21 stone frame on dodgy hands and legs....
and after all the running round the day before and shopping I must be mad and knew thiswould happen...
I dont think its a full crash im just hurting like mad the pain killers are NOT helping as if they ever do...and my body is very weak, typing this is taking my time with one finger and taking breaks...
See and I just have to laugh what a stupid nelly I am I need to learn to rest more and not try to climb walls with kids.
After climbing the hundreds of stairs too I was finished thank heavens it was home time.......
"Ground Control to Major Tom
Ground Control to Major Tom
Take your protein pills and put your helmet on"
Ten, Nine, Eight, Seven, Six, Five,
Four, Three, Two, One, Liftoff...............
Well not lift off, I'm going nowhere fast today,I have had to let my Mum and little Niece down for lunch cos I am unable to drive, my daughter is bringing me a sandwich and making me tea and I will just lie here in the semi darkness, Baking in my tin can, promising myself that I will never do anything stupid like wall climbing with a 5 yr old again.....
I am smiling though...... I had a fantastic time lmao.....
And I'm taking him again on Friday...so till next time Ouch and out...
Peace love light and Huggles
xxxxxxxxxxxxx
Daisy,Lesley ,wife Mother,sister, daughter Grandma and friend
A general blog for when im away from my home in Mavis my caravan, and when Im at home... How i cope with having ME/CFS/fibro and the feelings and the way i handle them.... and some of the rantings in my head... come on lets blog along together ..x
Wednesday, 30 June 2010
Monday, 28 June 2010
well here I am....again
why is it, you can feel so crap and low but still manage a smile and to say in answer to how are you, "oh im fine thanks", I want to shout no I feel crap and I hurt in ways you never thought possible, but at the risk of repeating myself AGAIN I dont......
No wonder we are not believed, how is it that you can be fine one hour and then the next few hours be in total agony, I say if there is a god he is full of fun and likes a bloody good laugh at our expense,what with wars fighting floods, famine, ruin all other disasters and then on top illness and M.E..
Not to be rude but if you do believe in you thats your choice im ranting and im sure you all have that answer for me, which of course I will not believe....
I mean you really couldn't make it up could you...? could You (aimed at Stephen Spielberg)....??? Yeah probably !!
Monday 28th June.. Last Night, Sunday night, no sleep was on facebook till it went light (approx. 5am) then slept kind of, till Adam (hubby) brought me a cup of tea to the van at 8.30am...I felt ROUGH as a bears arse...Grrrrr
Was hoping to take it easy as I was in a lot of pain since my fall on Friday night had caused more pain in my right hip again... but things never work out how you expect do they..........
The Urgent Phone call from hubby...
HELP !!It was Adams cry down the phone, I know your not good and I wouldnt ask you (who else would you ask then ?) BUT...... I NEED 5 white Ladies Polo shirts yesterday, 3 small 1 med 1 large... can you get them for me the supplier hasnt delivered blah blah blah
After taking till 12 to get t the point where I could dress I rushed to get ready and I sprang through the door at 2.30 !!! Yes, I am joking there I crawled.....
Should be easy a quick trip to Matalan, got there walked to the OTHER side of the store sweat dripping off me in the heat, NO Ladies white Polo shirts..... they dont do them anymore.....Off to M&S.........No they dont do them at all, off to BHS No they dont do them Off to Asda Nope, Sainsburys....Nope......where will I get them from....
OOOps side tracked in to clerks and bought my grandson a pair of sandals and in to the toy shop had a bag with torch drinking bottle and sleeping bag in offer £5 bargain..anyway
I couldnt find these polo shirts, I got nowt for tea and we ended up having chippy tea.... my legs are hurting lots I have taken drugs and I am fed up....
Best is the customer said they would be happier to have T-shirts instead !!!
I give up !!!!
Hurray for the rain
Its raining just to finish my lovely day off its cooler and Im going to bed...
Goodnight all my friends I only wish I could spend all that time today shopping for me .......
Huggles and love peace and light
Daisy, Lesley, Mum, Sister, Daughter
and Grandma xxx
No wonder we are not believed, how is it that you can be fine one hour and then the next few hours be in total agony, I say if there is a god he is full of fun and likes a bloody good laugh at our expense,what with wars fighting floods, famine, ruin all other disasters and then on top illness and M.E..
Not to be rude but if you do believe in you thats your choice im ranting and im sure you all have that answer for me, which of course I will not believe....
I mean you really couldn't make it up could you...? could You (aimed at Stephen Spielberg)....??? Yeah probably !!
Monday 28th June.. Last Night, Sunday night, no sleep was on facebook till it went light (approx. 5am) then slept kind of, till Adam (hubby) brought me a cup of tea to the van at 8.30am...I felt ROUGH as a bears arse...Grrrrr
Was hoping to take it easy as I was in a lot of pain since my fall on Friday night had caused more pain in my right hip again... but things never work out how you expect do they..........
The Urgent Phone call from hubby...
HELP !!It was Adams cry down the phone, I know your not good and I wouldnt ask you (who else would you ask then ?) BUT...... I NEED 5 white Ladies Polo shirts yesterday, 3 small 1 med 1 large... can you get them for me the supplier hasnt delivered blah blah blah
After taking till 12 to get t the point where I could dress I rushed to get ready and I sprang through the door at 2.30 !!! Yes, I am joking there I crawled.....
Should be easy a quick trip to Matalan, got there walked to the OTHER side of the store sweat dripping off me in the heat, NO Ladies white Polo shirts..... they dont do them anymore.....Off to M&S.........No they dont do them at all, off to BHS No they dont do them Off to Asda Nope, Sainsburys....Nope......where will I get them from....
OOOps side tracked in to clerks and bought my grandson a pair of sandals and in to the toy shop had a bag with torch drinking bottle and sleeping bag in offer £5 bargain..anyway
I couldnt find these polo shirts, I got nowt for tea and we ended up having chippy tea.... my legs are hurting lots I have taken drugs and I am fed up....
Best is the customer said they would be happier to have T-shirts instead !!!
I give up !!!!
Hurray for the rain
Its raining just to finish my lovely day off its cooler and Im going to bed...
Goodnight all my friends I only wish I could spend all that time today shopping for me .......
Huggles and love peace and light
Daisy, Lesley, Mum, Sister, Daughter
and Grandma xxx
Wednesday, 23 June 2010
Ahhh Home at last
Well!things didnt quite go to plan for the second half of my trip my phone had problems and I couldnt connect to the net and I couldnt even find a wifi spot....
I had a fair trip to Bidford on avon from Oxford, everything takes longer when your towing a caravan...
Any way I got there and found no internet connection and the field wasnt quite how I remember it.....
The toilets I didnt even go in and the shower needed condemning...
But the people were lovely that were there and It was so fantastic to see them all again.....
After a hot hot hot sun bathing weekend it was time to pack up and get mavis ready for the 150 ish mile drive home....which realistically should have taken me approx 2.5 hrs !
After driving for 6.5 whole hours with just one rest, due to having nowhere to stop because of traffic queues, rubber neckers and really bad accidents on the M6 motorway, I drove across land still hitting bad traffic, and still not getting a rest....
Once I did manage to stop, I was aware that I was so exhausted, that I had to push on to get home...
I had a fair trip to Bidford on avon from Oxford, everything takes longer when your towing a caravan...
Any way I got there and found no internet connection and the field wasnt quite how I remember it.....
The toilets I didnt even go in and the shower needed condemning...
But the people were lovely that were there and It was so fantastic to see them all again.....
After a hot hot hot sun bathing weekend it was time to pack up and get mavis ready for the 150 ish mile drive home....which realistically should have taken me approx 2.5 hrs !
After driving for 6.5 whole hours with just one rest, due to having nowhere to stop because of traffic queues, rubber neckers and really bad accidents on the M6 motorway, I drove across land still hitting bad traffic, and still not getting a rest....
Once I did manage to stop, I was aware that I was so exhausted, that I had to push on to get home...
Wednesday, 16 June 2010
The high before the fall !!
sorry I didnt post yesterday, i had not too bad a day was feeling achey and tired and my legs hurt, Then i went to Sainsburies shopping for tea and made tea and spent a fantastic hour or maybe two filling my water and chatting to Julie and Ken.....
As 10pm arrived I realised I could no longer keep my eyes open and went to bed.....what a horrendous night every thing hurt or jumped round the bed in pain!
And at 4.30 am I went to the loo again, for a dribble ! and ended up on the floor of the van my legs gave way I was there for approx 30 mins unable to get myself up..
I dont think I slept more than an hour maybe an hour 30 mins, despiteTramadol and diclofenac....yep it still hurt, This morning I feel like I have been rolled round the fields by a 1000 kilo bull with 4 foot horns, I ache and hurt.
So today im in bed in the caravan resting,noone has stuck their head in yet to see if im ok, but why should they most people dont see you ill do they they see a well person..
so im resting with my aches pains and bruises, cant wait to get to the cottage where I will be with people who understand just how poorly I am sometimes...
I need a cuddle off my hubby a very gentle one and something to make me feel better like 30 days sleep, but we all know that wouldnt work either....
I am feeling so low and alone..........I know you read this Adam I am really missing you today I love you so much.xxxxxxx
Hoping tomorrow is better, I would even have Alex at this point of lowness
see you then
Daisy
xx
As 10pm arrived I realised I could no longer keep my eyes open and went to bed.....what a horrendous night every thing hurt or jumped round the bed in pain!
And at 4.30 am I went to the loo again, for a dribble ! and ended up on the floor of the van my legs gave way I was there for approx 30 mins unable to get myself up..
I dont think I slept more than an hour maybe an hour 30 mins, despiteTramadol and diclofenac....yep it still hurt, This morning I feel like I have been rolled round the fields by a 1000 kilo bull with 4 foot horns, I ache and hurt.
So today im in bed in the caravan resting,noone has stuck their head in yet to see if im ok, but why should they most people dont see you ill do they they see a well person..
so im resting with my aches pains and bruises, cant wait to get to the cottage where I will be with people who understand just how poorly I am sometimes...
I need a cuddle off my hubby a very gentle one and something to make me feel better like 30 days sleep, but we all know that wouldnt work either....
I am feeling so low and alone..........I know you read this Adam I am really missing you today I love you so much.xxxxxxx
Hoping tomorrow is better, I would even have Alex at this point of lowness
see you then
Daisy
xx
Monday, 14 June 2010
Good Afternoon
I managed to get a nice restful sleep last night so much so that I woke up at 7 am and GOT up for the day (howeverI do feel a nap coming on as its now13:45).
I have some lovely company here I even made bacon and chees sarnies for joan and Jim to thank them for looking after me, they are so lovely i am lucky to be their neighbour.
I may trip out later or even leave it till tomorrow as I am having visitors hope they like pasta ? or risotto?
It will be a surprise for them both, im looking forward to seeing Julie again after so long and meeting Ken her partner for the first time.
weather today warm breezy and cloudy but pleasant enough....
Catch you all later time for meds and a nap
love and huggles
Daisy
xxx
I have some lovely company here I even made bacon and chees sarnies for joan and Jim to thank them for looking after me, they are so lovely i am lucky to be their neighbour.
I may trip out later or even leave it till tomorrow as I am having visitors hope they like pasta ? or risotto?
It will be a surprise for them both, im looking forward to seeing Julie again after so long and meeting Ken her partner for the first time.
weather today warm breezy and cloudy but pleasant enough....
Catch you all later time for meds and a nap
love and huggles
Daisy
xxx
Sunday, 13 June 2010
Sunday 13th
Well its rained......... and rained ......and rained.
i was up in the early hours listening to the rain on the roof of the van..
then approx 6-7 up again with the rain.
I got up today at 11am, Fridays drive is starting to take its toll, and although I have not had loads of pain the fatigue is almost too much, and im really struggling.
I have had lots of naps and even taken myself off to bed tonight early but as soon as you get into bed DING your brain wakes up....
so this is why im blogging with aching arms hands and fingers and a brain that thinks its awake, but is so deep in fog its cant see out.
Tomorrow I just know already whats going to happen...... I see myself in bed for most of the day trying to get a little bit of balance, I am not "doing" anything in the day apart from drinking tea and sitting chatting but its certainly a little too much for me whilst I am tired..
Another day tomorrow lets see what occurs, Oh forgot to say got my dinner made AGAIN tonight Jim and Joan are stars beautiful people I feel a little useless and lazy when I watch her zoom around, as I said she also has fibro but runs round all the time??????? HOW?
Well good night everyone I will chat with you again tomorrow..
Huggles and love Daisy xxx
i was up in the early hours listening to the rain on the roof of the van..
then approx 6-7 up again with the rain.
I got up today at 11am, Fridays drive is starting to take its toll, and although I have not had loads of pain the fatigue is almost too much, and im really struggling.
I have had lots of naps and even taken myself off to bed tonight early but as soon as you get into bed DING your brain wakes up....
so this is why im blogging with aching arms hands and fingers and a brain that thinks its awake, but is so deep in fog its cant see out.
Tomorrow I just know already whats going to happen...... I see myself in bed for most of the day trying to get a little bit of balance, I am not "doing" anything in the day apart from drinking tea and sitting chatting but its certainly a little too much for me whilst I am tired..
Another day tomorrow lets see what occurs, Oh forgot to say got my dinner made AGAIN tonight Jim and Joan are stars beautiful people I feel a little useless and lazy when I watch her zoom around, as I said she also has fibro but runs round all the time??????? HOW?
Well good night everyone I will chat with you again tomorrow..
Huggles and love Daisy xxx
Saturday, 12 June 2010
Bloody football !!!
EVERYONE IS WATCHING IT, ok i want ENGLAND to win but please dont subject me to the noise of it too and the cheering pillocks...
Just a little tired and head and neck ache.. (manageable)
Green hill farm is beautiful and once I learn how to put photos on I will..
It was a hell of a drive yesterday I was shot, but I got up today at 9.30 am with a smile, popped a couple of pills and away .
My next door neighbours Joan and her hubby Jim?(forgot already) have been fantastic.
Joan also has Fibromyalgia but runs round like a spring chicken...why cant I do that ???
She made me breakfast of cheese on toast amazing it was...
As there is no reception on my tv I have HAD to relax with a tatty mag and conversation, there are only 5 of us here now so at least i can slope off if i need to....
Got to laugh im sat here on my scooter in the sun squinting at the screen, and watching the swallows and their chicks as the chicks fledge, from the roof of the disabled toilet block...Pretty thought hey!
Anyway the sun is setting and its will soon be time for me to take Dr Citralopram and doctor Tramodol to bed...
see you tomorrow in the sunshine, day of my adventure complete over and out peace and love
xxxx
Friday, 11 June 2010
Up Up and almost away!
Woke up at 6.55am and got up at 7.30am....
Got to the bathroom for a shower 7.55 am, i actually managed to wash myself and my hair, something is going to go wrong isnt it!
I have a lot of pain in my left hip so forced a banana dow to take pills and rubbed with ibruprofen gel too... well if it hurts you have to try at least to be comfortable, remember I have a very long road trip ahead.
I have a nice cup of tea my son Haydn has made for me so once I have this inside me I will put my bag water painkillers and Me in the car after hitching up mavis of course.
I will post again when I arrive in Oxford....If I arrive I may be found sleeping in Mavis on the road side.
PS my scooter battery charger came yesterday very impressed and Norris is ready for action again.
Peace love and light
Thursday, 10 June 2010
Tomorrows my go day
Well one day to go Mavis is ready, all I need to do is get my clothing ready, quite easy if you were "normal" but it takes me longer and longer as the day goes on....
I have modified Mavis's bed so that its higher but it will have to stay up cos I will not have the energy to put it up and down so glad I have a 4 berth Van...
Actually, I must remember my password so I can do my blog whilst im away..NOTE some one please remind me via face book tonight when my lappy is in the house, please...
So I hope to be leaving for Oxford at 11am tomorrow morning ATM 15:00 ish after maybe 2-3 stops for a rest and maybe a nap!
so now Ill go and rest a while look out for more updates Im knackered and need something for the pain in my hip (again)
huggles
Daisy /Lesley / Mum/Sister/Daughter
xxx
Wednesday, 9 June 2010
First Blogg
Well as from the 11th, I am away in Mavis the caravan to Oxford and then on to Bidford-on-Avon.
My first long trip alone really in the last 3 yrs., I just hope I can cope.
Not too difficult as there will be people on hand to help me out, I just HATE having to ask for it.
I have had to send off for a new Battery charger for Norris my mobility scooter as his is kaput.
And my holiday money is fast dwindling lol
I will use this blog to keep in touch to add piccys to as I go on my travels, my pain status and how I am coping with a dodgy hip also...
Oh didn't I say I have had ME/cfs and Fibromyalgia since 2003 and have been in pain everyday since. Due to my legs giving way I also have developed Arthritis in my right hip joint...
Fun Fun Fun keep smiling
Subscribe to:
Posts (Atom)