Well sudden changes
The weather outside is frightful, but the heatings so delightful.......
What a change in the weather its gone from hot to humid (didnt like that bit) to peeing it down and rather chilled....
Damp cold weather do NOT sit well with me my muscles or my brain...
The exciting bit
What I have been dying to tell you about is a baby shower i managed to go to on Sat, How exciting im going out whoop whoop..
My daughter who is expecting wanted company, so off we went all hot and sweaty...(does anyone else sweat a lot?)
My right side /hip/leg ect was really hurting and I struggled to walk more than 3-4 foot alone so I took my stick...not a problem..
As I got in the first thing I got from the girls Grandma was "oh thats a nice stick where did you get it from?? , Its much better than mine look and she proceeded to tell me all about her arthritis in her knees...PLEASE SHOOT ME, at close range if i ever get like that...
whilst she was taking a breath, I told her i got it from social services and that they would come and assess her for anything she needed......
"Why what have you got, and which side is it on?" she asked I could believe I was even having this conversation, and I wondered how I was going to explain ME to her... !!
Deep breath...
i just said I have ME, blank look back at me, and it hurts everywhere, but today i am very tire and its my right leg that cant keep up with my super speed body lmao...
she replied......"well there is always someone worse off than yourself isnt there !" I laughed and yes there is isnt there....
I sat in the garden with my daughter as chatting with loads of other people in the rom I find it quite difficult... I nipped in 5 steps minus my stick and the same lady pops up with I met a man on holiday who had ME, he said he was cured!
Didnt he have it long then I asked, oh yes 20 odd years she replied... well he is either a liar or has never had it for real, maybe he got man flu once i believe that can be quite bad !!!
Needless to say I did avoid her for the rest of the time, but she had sat next to the food table and then the desserts came out......
Monday 12 July 2010
Wednesday 30 June 2010
Stranded in a hot tin Van...
Baked alive..
I thought id better blog today as I am not brilliant I have pain in all my body legs back front sides ribs shoulders head jaw neck arms and hands and feet, and I am HOT..
It seems that whilst,"Here am I floating in my tin can," (Thanks to D Bowie, My life feels a little like ground control to major Tom sometimes !)..
...... and the sun has come back out in the UK, after the amazing cooling rain and I am almost cooked with no escape...
"Planet earth is blue but there's nothing I can do".
Last night with my grandson Billy
I took Billy (My almost 5 yr old grandson) to the big climbing walls at Marple Mill, his Uncle and step Dad were going and so my 32 week Pregnant daughter could get some rest.....
once we got there he was enthralled with the place and wanted to climb, I paid the money and it was the best £5 I have ever spent, He loved it, climbing higher than I thought he would/could. The only thing was climbing down but with a 20 ins crash mat on the floor that was easy!! 3 hrs later.................
I also tried to do a little I got to approx. 6ins off the ground and that is the reason for my body hurting so much i was holding my 21 stone frame on dodgy hands and legs....
and after all the running round the day before and shopping I must be mad and knew thiswould happen...
I dont think its a full crash im just hurting like mad the pain killers are NOT helping as if they ever do...and my body is very weak, typing this is taking my time with one finger and taking breaks...
See and I just have to laugh what a stupid nelly I am I need to learn to rest more and not try to climb walls with kids.
After climbing the hundreds of stairs too I was finished thank heavens it was home time.......
"Ground Control to Major Tom
Ground Control to Major Tom
Take your protein pills and put your helmet on"
Ten, Nine, Eight, Seven, Six, Five,
Four, Three, Two, One, Liftoff...............
Well not lift off, I'm going nowhere fast today,I have had to let my Mum and little Niece down for lunch cos I am unable to drive, my daughter is bringing me a sandwich and making me tea and I will just lie here in the semi darkness, Baking in my tin can, promising myself that I will never do anything stupid like wall climbing with a 5 yr old again.....
I am smiling though...... I had a fantastic time lmao.....
And I'm taking him again on Friday...so till next time Ouch and out...
Peace love light and Huggles
xxxxxxxxxxxxx
Daisy,Lesley ,wife Mother,sister, daughter Grandma and friend
I thought id better blog today as I am not brilliant I have pain in all my body legs back front sides ribs shoulders head jaw neck arms and hands and feet, and I am HOT..
It seems that whilst,"Here am I floating in my tin can," (Thanks to D Bowie, My life feels a little like ground control to major Tom sometimes !)..
...... and the sun has come back out in the UK, after the amazing cooling rain and I am almost cooked with no escape...
"Planet earth is blue but there's nothing I can do".
Last night with my grandson Billy
I took Billy (My almost 5 yr old grandson) to the big climbing walls at Marple Mill, his Uncle and step Dad were going and so my 32 week Pregnant daughter could get some rest.....
once we got there he was enthralled with the place and wanted to climb, I paid the money and it was the best £5 I have ever spent, He loved it, climbing higher than I thought he would/could. The only thing was climbing down but with a 20 ins crash mat on the floor that was easy!! 3 hrs later.................
I also tried to do a little I got to approx. 6ins off the ground and that is the reason for my body hurting so much i was holding my 21 stone frame on dodgy hands and legs....
and after all the running round the day before and shopping I must be mad and knew thiswould happen...
I dont think its a full crash im just hurting like mad the pain killers are NOT helping as if they ever do...and my body is very weak, typing this is taking my time with one finger and taking breaks...
See and I just have to laugh what a stupid nelly I am I need to learn to rest more and not try to climb walls with kids.
After climbing the hundreds of stairs too I was finished thank heavens it was home time.......
"Ground Control to Major Tom
Ground Control to Major Tom
Take your protein pills and put your helmet on"
Ten, Nine, Eight, Seven, Six, Five,
Four, Three, Two, One, Liftoff...............
Well not lift off, I'm going nowhere fast today,I have had to let my Mum and little Niece down for lunch cos I am unable to drive, my daughter is bringing me a sandwich and making me tea and I will just lie here in the semi darkness, Baking in my tin can, promising myself that I will never do anything stupid like wall climbing with a 5 yr old again.....
I am smiling though...... I had a fantastic time lmao.....
And I'm taking him again on Friday...so till next time Ouch and out...
Peace love light and Huggles
xxxxxxxxxxxxx
Daisy,Lesley ,wife Mother,sister, daughter Grandma and friend
Monday 28 June 2010
well here I am....again
why is it, you can feel so crap and low but still manage a smile and to say in answer to how are you, "oh im fine thanks", I want to shout no I feel crap and I hurt in ways you never thought possible, but at the risk of repeating myself AGAIN I dont......
No wonder we are not believed, how is it that you can be fine one hour and then the next few hours be in total agony, I say if there is a god he is full of fun and likes a bloody good laugh at our expense,what with wars fighting floods, famine, ruin all other disasters and then on top illness and M.E..
Not to be rude but if you do believe in you thats your choice im ranting and im sure you all have that answer for me, which of course I will not believe....
I mean you really couldn't make it up could you...? could You (aimed at Stephen Spielberg)....??? Yeah probably !!
Monday 28th June.. Last Night, Sunday night, no sleep was on facebook till it went light (approx. 5am) then slept kind of, till Adam (hubby) brought me a cup of tea to the van at 8.30am...I felt ROUGH as a bears arse...Grrrrr
Was hoping to take it easy as I was in a lot of pain since my fall on Friday night had caused more pain in my right hip again... but things never work out how you expect do they..........
The Urgent Phone call from hubby...
HELP !!It was Adams cry down the phone, I know your not good and I wouldnt ask you (who else would you ask then ?) BUT...... I NEED 5 white Ladies Polo shirts yesterday, 3 small 1 med 1 large... can you get them for me the supplier hasnt delivered blah blah blah
After taking till 12 to get t the point where I could dress I rushed to get ready and I sprang through the door at 2.30 !!! Yes, I am joking there I crawled.....
Should be easy a quick trip to Matalan, got there walked to the OTHER side of the store sweat dripping off me in the heat, NO Ladies white Polo shirts..... they dont do them anymore.....Off to M&S.........No they dont do them at all, off to BHS No they dont do them Off to Asda Nope, Sainsburys....Nope......where will I get them from....
OOOps side tracked in to clerks and bought my grandson a pair of sandals and in to the toy shop had a bag with torch drinking bottle and sleeping bag in offer £5 bargain..anyway
I couldnt find these polo shirts, I got nowt for tea and we ended up having chippy tea.... my legs are hurting lots I have taken drugs and I am fed up....
Best is the customer said they would be happier to have T-shirts instead !!!
I give up !!!!
Hurray for the rain
Its raining just to finish my lovely day off its cooler and Im going to bed...
Goodnight all my friends I only wish I could spend all that time today shopping for me .......
Huggles and love peace and light
Daisy, Lesley, Mum, Sister, Daughter
and Grandma xxx
No wonder we are not believed, how is it that you can be fine one hour and then the next few hours be in total agony, I say if there is a god he is full of fun and likes a bloody good laugh at our expense,what with wars fighting floods, famine, ruin all other disasters and then on top illness and M.E..
Not to be rude but if you do believe in you thats your choice im ranting and im sure you all have that answer for me, which of course I will not believe....
I mean you really couldn't make it up could you...? could You (aimed at Stephen Spielberg)....??? Yeah probably !!
Monday 28th June.. Last Night, Sunday night, no sleep was on facebook till it went light (approx. 5am) then slept kind of, till Adam (hubby) brought me a cup of tea to the van at 8.30am...I felt ROUGH as a bears arse...Grrrrr
Was hoping to take it easy as I was in a lot of pain since my fall on Friday night had caused more pain in my right hip again... but things never work out how you expect do they..........
The Urgent Phone call from hubby...
HELP !!It was Adams cry down the phone, I know your not good and I wouldnt ask you (who else would you ask then ?) BUT...... I NEED 5 white Ladies Polo shirts yesterday, 3 small 1 med 1 large... can you get them for me the supplier hasnt delivered blah blah blah
After taking till 12 to get t the point where I could dress I rushed to get ready and I sprang through the door at 2.30 !!! Yes, I am joking there I crawled.....
Should be easy a quick trip to Matalan, got there walked to the OTHER side of the store sweat dripping off me in the heat, NO Ladies white Polo shirts..... they dont do them anymore.....Off to M&S.........No they dont do them at all, off to BHS No they dont do them Off to Asda Nope, Sainsburys....Nope......where will I get them from....
OOOps side tracked in to clerks and bought my grandson a pair of sandals and in to the toy shop had a bag with torch drinking bottle and sleeping bag in offer £5 bargain..anyway
I couldnt find these polo shirts, I got nowt for tea and we ended up having chippy tea.... my legs are hurting lots I have taken drugs and I am fed up....
Best is the customer said they would be happier to have T-shirts instead !!!
I give up !!!!
Hurray for the rain
Its raining just to finish my lovely day off its cooler and Im going to bed...
Goodnight all my friends I only wish I could spend all that time today shopping for me .......
Huggles and love peace and light
Daisy, Lesley, Mum, Sister, Daughter
and Grandma xxx
Wednesday 23 June 2010
Ahhh Home at last
Well!things didnt quite go to plan for the second half of my trip my phone had problems and I couldnt connect to the net and I couldnt even find a wifi spot....
I had a fair trip to Bidford on avon from Oxford, everything takes longer when your towing a caravan...
Any way I got there and found no internet connection and the field wasnt quite how I remember it.....
The toilets I didnt even go in and the shower needed condemning...
But the people were lovely that were there and It was so fantastic to see them all again.....
After a hot hot hot sun bathing weekend it was time to pack up and get mavis ready for the 150 ish mile drive home....which realistically should have taken me approx 2.5 hrs !
After driving for 6.5 whole hours with just one rest, due to having nowhere to stop because of traffic queues, rubber neckers and really bad accidents on the M6 motorway, I drove across land still hitting bad traffic, and still not getting a rest....
Once I did manage to stop, I was aware that I was so exhausted, that I had to push on to get home...
I had a fair trip to Bidford on avon from Oxford, everything takes longer when your towing a caravan...
Any way I got there and found no internet connection and the field wasnt quite how I remember it.....
The toilets I didnt even go in and the shower needed condemning...
But the people were lovely that were there and It was so fantastic to see them all again.....
After a hot hot hot sun bathing weekend it was time to pack up and get mavis ready for the 150 ish mile drive home....which realistically should have taken me approx 2.5 hrs !
After driving for 6.5 whole hours with just one rest, due to having nowhere to stop because of traffic queues, rubber neckers and really bad accidents on the M6 motorway, I drove across land still hitting bad traffic, and still not getting a rest....
Once I did manage to stop, I was aware that I was so exhausted, that I had to push on to get home...
Wednesday 16 June 2010
The high before the fall !!
sorry I didnt post yesterday, i had not too bad a day was feeling achey and tired and my legs hurt, Then i went to Sainsburies shopping for tea and made tea and spent a fantastic hour or maybe two filling my water and chatting to Julie and Ken.....
As 10pm arrived I realised I could no longer keep my eyes open and went to bed.....what a horrendous night every thing hurt or jumped round the bed in pain!
And at 4.30 am I went to the loo again, for a dribble ! and ended up on the floor of the van my legs gave way I was there for approx 30 mins unable to get myself up..
I dont think I slept more than an hour maybe an hour 30 mins, despiteTramadol and diclofenac....yep it still hurt, This morning I feel like I have been rolled round the fields by a 1000 kilo bull with 4 foot horns, I ache and hurt.
So today im in bed in the caravan resting,noone has stuck their head in yet to see if im ok, but why should they most people dont see you ill do they they see a well person..
so im resting with my aches pains and bruises, cant wait to get to the cottage where I will be with people who understand just how poorly I am sometimes...
I need a cuddle off my hubby a very gentle one and something to make me feel better like 30 days sleep, but we all know that wouldnt work either....
I am feeling so low and alone..........I know you read this Adam I am really missing you today I love you so much.xxxxxxx
Hoping tomorrow is better, I would even have Alex at this point of lowness
see you then
Daisy
xx
As 10pm arrived I realised I could no longer keep my eyes open and went to bed.....what a horrendous night every thing hurt or jumped round the bed in pain!
And at 4.30 am I went to the loo again, for a dribble ! and ended up on the floor of the van my legs gave way I was there for approx 30 mins unable to get myself up..
I dont think I slept more than an hour maybe an hour 30 mins, despiteTramadol and diclofenac....yep it still hurt, This morning I feel like I have been rolled round the fields by a 1000 kilo bull with 4 foot horns, I ache and hurt.
So today im in bed in the caravan resting,noone has stuck their head in yet to see if im ok, but why should they most people dont see you ill do they they see a well person..
so im resting with my aches pains and bruises, cant wait to get to the cottage where I will be with people who understand just how poorly I am sometimes...
I need a cuddle off my hubby a very gentle one and something to make me feel better like 30 days sleep, but we all know that wouldnt work either....
I am feeling so low and alone..........I know you read this Adam I am really missing you today I love you so much.xxxxxxx
Hoping tomorrow is better, I would even have Alex at this point of lowness
see you then
Daisy
xx
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